Welcome!!

Announcements from the Welsh local group.

Moderator: Sweet

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nicola jayne
Regular contributor
Regular contributor
Posts: 109
Joined: Tue 21 Feb 2006 12:34 pm
Location: lanelli
Contact:

Re: Welcome!!

Postby nicola jayne » Mon 14 Jan 2008 12:39 pm

YAY
I have only just seen this LOL ... YAY
hope everyone is ok :)
I am in Llanelli aswell.
((hugs))
Nicola

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sweetieoftwo
Contributor
Contributor
Posts: 14
Joined: Fri 04 Jan 2008 5:15 pm
Keratoconus: Yes, I have KC
Vision: Contact lenses

Re: Welcome!!

Postby sweetieoftwo » Mon 14 Jan 2008 11:30 pm

Hi all, it's Sweet's twin who also lives in London with KC but has only now started using this forum :-)

Hope you're all well and look forward to chatting some more!

Em x

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nicola jayne
Regular contributor
Regular contributor
Posts: 109
Joined: Tue 21 Feb 2006 12:34 pm
Location: lanelli
Contact:

Re: Welcome!!

Postby nicola jayne » Tue 15 Jan 2008 7:28 pm

YAY a welsh group
I thought I had replied to this but I cant find it so perhaps I did'nt LoL ... having a silly day...
I am in Llanelli aswell got diagnosed 8 years ish ago. had one graft and one to go. I cant abide contact's ( I have tourettes aswell so contacts don't go well with eye tic's lol )
so wear glasses, or as my dad would say cross eyed milk bottles lol.
Good to see some welsh peeps
hope this message finds you all well
kind regards
nicola

zagham
Posts: 0
Joined: Fri 22 Aug 2008 6:35 am
Keratoconus: Yes, I have KC
Vision: I'm coping with no aids

Re: Welcome!!

Postby zagham » Fri 22 Aug 2008 6:48 am

Does anyone know if cardiff university is researching KC?

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stephieee7
Newbie
Newbie
Posts: 1
Joined: Tue 12 May 2009 9:56 am
Keratoconus: Yes, I have KC
Vision: I'm coping with no aids
Location: Cardiff, Wales

Re: Welcome!!

Postby stephieee7 » Tue 12 May 2009 6:46 pm

Hello everyone,
I am glad that there is a welsh group on here as I am from Cardiff! I very recently got diagnosed with KC (about 6 months ago) I am only 19 and they say that it develops in the late teens! mine isn't that bad atm, and wasn't referred to a hospital or optimetrest because there was no need for contacts etc which I'm glad about for the moment!
glad to see that people in Wales are talking about KC!

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Richard In Wales
Regular contributor
Regular contributor
Posts: 103
Joined: Fri 16 Jan 2004 7:48 pm
Location: Aberystwyth

Re: Welcome!!

Postby Richard In Wales » Tue 09 Jun 2009 7:58 pm

I'm in Aberystwyth

owaine
Posts: 0
Joined: Thu 30 Jul 2009 5:58 pm
Keratoconus: Yes, I have KC
Vision: I'm coping with no aids

Re: Welcome!!

Postby owaine » Thu 30 Jul 2009 6:04 pm

Hi there,

I've been diagnosed with KC for a few years but have managed to get a long without any aids. I now feel that my vision is getting a bit too blurry and should try and sort out some contact lenses.

I live in Cardiff and so was wondering if anyone could recommend an optician in this vicinity?

Thanks,

Owain

jamiemwhite
Newbie
Newbie
Posts: 8
Joined: Wed 19 Aug 2009 6:46 pm
Keratoconus: Yes, I have KC
Vision: Contact lenses

Re: Welcome!!

Postby jamiemwhite » Sun 23 Aug 2009 7:19 pm

[quote]HI all,

I'm from Llanelli, glad to see that i'm not the only Welsh person that has to suffer with this!

I'm currenlty going through the piggy back method but have an appointmnet tomorrow so hopefully that will change to comething a lot easier :s[/quote]

have u tried so2clear lences i heard they give u the comfort of a soft lence and visson of ahard lence? jamie swansea

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Andrew MacLean
Moderator
Moderator
Posts: 7707
Joined: Thu 15 Jan 2004 8:01 pm
Keratoconus: Yes, I have KC
Vision: Other
Location: Scotland

Re: Welcome!!

Postby Andrew MacLean » Wed 26 Aug 2009 8:40 am

jamiemwhite wrote:HI all,

I'm from Llanelli, glad to see that i'm not the only Welsh person that has to suffer with this!

I'm currenlty going through the piggy back method but have an appointmnet tomorrow so hopefully that will change to comething a lot easier :s

have u tried so2clear lences i heard they give u the comfort of a soft lence and visson of ahard lence? jamie swansea


Hello Jamie

Welcome to the forum.

Enjoy using the forum as a place to meet others with KC; exchange ideas, offer and gain support as you cope with your condition.

All the best

Andrew
Andrew MacLean

gilly49
Newbie
Newbie
Posts: 9
Joined: Mon 15 Dec 2008 10:00 pm
Keratoconus: No, I don't suffer from KC

Re: CXL

Postby gilly49 » Thu 05 Nov 2009 12:46 pm

Hi there, I haven't been on the website for some time now but just thought I would let you know that my son, Josh (18) is going to have CXL on his right eye next Saturday 15th November 2009. The procedure is being carried out by Mr Vinod Kumar of the Bridgend Eye Hospital at a cost of £1800. Will let you know how he goes on or hopefully he will address the forum himself to share his experience. Josh was diagnosed in 2008 and we have interesting experiences/information which I could do you a little article on if you like of how we finally came to the decision to go for CXL. In the meantime if this post reaches the general discussion forum as well as the Welsh members, then is there anyone else out there that has had cross linking done recently and could share their experience with Josh please?
Gillykee (worriedmum)


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