Where are you based and are you attending a more specialist NHS eye clinic, for example Moorfields in London/Manchester Eye Hospital/Birmingham Eye Hospital or are you under a more local nhs hospital? I ask as i am under a more local nhs hospital who dont really get how KC affects my life etc, however that is my choice and i understand the limitations of using this hospital. I am lucky in that my CL fitter is very understanding, and all her CL sessions are a minimum of 20 minutes for all KC sufferers and she spends as much time as needed trying to find suitable fits/lenses. I am also lucky as i have good vision (very early stages of KC) in one eye so i can still get by with glasses for that eye.
If your son isnt under someone who specialises/knows and understands KC, and the implications but who also understands something about autism then i would look at getting a second opinion/referal to a more specialist eye clinic, and make sure that they understand how your son's autism works.
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