Cross Linking

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gilly49
Newbie
Newbie
Posts: 9
Joined: Mon 15 Dec 2008 10:00 pm
Keratoconus: No, I don't suffer from KC

Cross Linking

Postby gilly49 » Thu 05 Nov 2009 1:05 pm

This message is for Lynn White.
My name is Gill Keeling and you were kind enough to telephone me and discuss my son's KC etc. just over 12 months ago as we felt we had been rushed into making a decision to go ahead with cxl before we knew all the facts.
You were most helpful and I thank you again for that. (If you don't remember me, I am the lady living in Pembrokeshire who moved from Stoke on Trent) and my son had been to see Mr Muhtaseb in The Mumbles, Swansea.
You gave me very sound advice with regard to postponing the treatment until Josh had got through his driving test which thankfully he now has. He is 18 now and I thought you might like to know that he is now going for CXL on his right eye on Saturday 15th November 2009. Unfortunately, his left eye (which was the worse of the 2) had deteriorated too far (Josh's corneal thickness on this eye was 380; it was just over 400 when he was first seen 10 months ago) so we are going ahead with the right eye just in case the same happens.
Josh now seems very positive about having the CXL. He has been wearing gp lenses off and on (more off than on!) as he has struggled with the comfort issue. He recently had a stronger prescription new pair of glasses but he talks of trying the lenses again as he has recently taken up football again and finds wearing glasses difficult.
Will catch up with you again on the forum after his procedure if thats okay.
Anyone out there with pre-op advice?
Thanks again
Gill :D

Lizb
Forum Stalwart
Forum Stalwart
Posts: 331
Joined: Sun 02 Dec 2007 5:09 pm
Keratoconus: Yes, I have KC
Vision: Spectacles
Location: Preston, Lancashire

Re: Cross Linking

Postby Lizb » Thu 05 Nov 2009 4:13 pm

HI

I had the CXL procedure done just under a month ago (got my month follow up appointment next week). I didnt find it too bad, and didnt suffer with massive pain levels - believe i have been fortunate - or i just have high pain threshold. I had been warned it was going to be VERY painful.
Here is a summary of what happened during my procedure and following it;
http://ic-f.org/?page_id=254/cxl-cornea ... xperience/

Prior to the procedure i didnt have to do much, except not wear eye makeup for 24-36 hours prior to the procedure.

If you have any questions give me a shout and i will do my best to answer them about the procedure.
Life is too short for drama & petty things!
So laugh insanely, love truly and forgive quickly!


I´m not strange, I´m just not normal

Every sixty seconds you spend angry, upset or mad is a full minute of happiness you never get back

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Lynn White
Optometrist
Optometrist
Posts: 1398
Joined: Sat 12 Mar 2005 8:00 pm
Location: Leighton Buzzard

Re: Cross Linking

Postby Lynn White » Fri 06 Nov 2009 9:29 pm

Hi Gill

I do indeed remember you! Just a thought, cross linking has been done at 380 using a process whereby the cornea is saturated with distilled water to make it swell to the necessary thickness. Here is a link to a paper where this was done.

http://bmctoday.net/crstodayeurope/pdfs/0409_06.pdf

Lynn
Lynn White MSc FCOptom
Optometrist Contact Lens Fitter
Clinical Director, UltraVision

email: lynn.white@lwvc.co.uk

kitty kat
Contributor
Contributor
Posts: 40
Joined: Thu 27 Aug 2009 6:07 pm
Keratoconus: Yes, I have KC
Vision: Spectacles
Location: north ayrshire

Re: Cross Linking

Postby kitty kat » Thu 19 Nov 2009 8:47 pm

my son 13 at the time now 14 was given the injection to increase the thickness, but this didn't work for him :cry:
hope all went well with your son's crosslinking :D

Grifteruk
Contributor
Contributor
Posts: 29
Joined: Thu 25 Oct 2007 12:57 pm
Keratoconus: Yes, I have KC
Vision: Contact lenses

Re: Cross Linking

Postby Grifteruk » Sat 21 Nov 2009 8:52 am

Gilly,

Lynn is right about using a specific type of drops during the CXL procedure to increase corneal thickness. Mr Muhtaseb knows about this because he did it on me! One of my eyes had a thickness of under 360 but with the drops it got way over the 400 point to allow the CXL to take place.


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