Could this be KC?
Posted: Tue 24 Oct 2017 7:17 am
Hi to everyone,
First of all, sorry for a long post. The reason i am writing this is that i have these very weird visual symptoms (loads of them) and im afraid i might have KC. However, im beginning to think that this is neurological, but i would like to get someones opinion on that who knows KC from personal experience or otherwise, because i am not sure how quickly i can get to an eye doctor and whether i should ask the doctor referring me to the eye doctor to also get an MRI of me. I would like to also know how urgent it is to get treatment if you suspect that i might have KC, since i theoretically could go to an eye doctor in a week but then ill probably have to pay 500€ for the first visit, and i would not like to bankrupt my parents.
I recently noticed that i had developed very mild bilateral monocular diplopia. I have no idea when it started or whether i have always had it, but i noticed it for the first time about a year a go. However, now that i started paying more attention to it, i noticed that i actually dont see two images but rather loads of "ghost images", that are mostly on top of each other, even though when i look at certain type lights, like the emergency flasher -button on a car dashboard (happened to be a lit one), yeasterday i noticed that i could distinguish at least eight different images! And there seemed to be even more of them on top of each other.
However, this is where it gets weird, i mean when i first looked at the flasher, i think i could see two images max. But when i started staring at it, they started multiplying. Not even in a split second, it took at least several seconds, maybe more, for it to multiply to eight or more images. Also, i was looking at it from an angle (from the side), so some of the copies were not completely in a straight line, but when looking straight at it and not from an angle, they always are either above or below the object, which i think is different from the images i have seen that are at least supposed to show what bright likes could look like in KC.
.
Also, i normally see max two images initially and the ghost image is so vague that it took me at least a year (or maybe my whole life) before i realized something was wrong. But again, depending on the object im looking at and the lighting, background etc, the ghost images may start multiplying, or it is also possible that there seems to be only one ghost image, but that it appears above the object instead of under the object, where it usually appears. Usually it looks like letters have extra shadows etc, but sometimes (rarely tough) the double image can become completely detached from the original image, at least when looking at text on a screen. There is absolutely no way to determine when this will happen.
Also, if i see the text on my phone double or multiple, this doenst always or even usually mean that i would see the phone double. Or that i would see everything double either. I have also noticed that same objects or letters do not always multiply in the same way, and may not multiply even at all, and that for example when i now look at my computer screen the text seems mildly double, but when try to read text from my phone, then it is not doubled.
I have no clue as to what this is. I have noticed that i have mild illusionary palinopsia and the ghost images are pretty much exactly as transparent as my visual trails. Also, certain lighting conditions that make the ghost images stand out also make the trails stand out. I have heard from cerebral polyopia, but i read somewhere that in that case the images shouldnt overlap? Theres so little information on cerebral polyopia that its probably impossible to tell, but i hope that the doctor i see tomorrow can tell something about this and refers me to an eye doctor. I just dont know how fast i will get the appointment with they eye doctor through the public health services...
So any idea on whether this could be KC? I also have loads of other symptoms like halos and starbursts around lights, but then again i know for a fact that i have always had them. My vision is also generally OK, my ability to recognize letters at a distance might have been slightly reduced from what it was, but it seems to be the visual snow that prevents me from seeing, not the blurriness. Also strangely, the polyopia doesnt seem to have any effect in my ability to see at all, and as i kind of described, at least most of the time the images seem to be multiplying only when i stare at something.
I have never needed glasses and have no problems functioning when it comes to my vision. I have never had an injury to my eye. i do have neurological symptoms like illusory palinopsia, visual snow and severe migraines, and a history of at least five concussions. My MRI was normal though when we took it three years a go, but from what i hear only severe injuries show up on regular MRI.
First of all, sorry for a long post. The reason i am writing this is that i have these very weird visual symptoms (loads of them) and im afraid i might have KC. However, im beginning to think that this is neurological, but i would like to get someones opinion on that who knows KC from personal experience or otherwise, because i am not sure how quickly i can get to an eye doctor and whether i should ask the doctor referring me to the eye doctor to also get an MRI of me. I would like to also know how urgent it is to get treatment if you suspect that i might have KC, since i theoretically could go to an eye doctor in a week but then ill probably have to pay 500€ for the first visit, and i would not like to bankrupt my parents.
I recently noticed that i had developed very mild bilateral monocular diplopia. I have no idea when it started or whether i have always had it, but i noticed it for the first time about a year a go. However, now that i started paying more attention to it, i noticed that i actually dont see two images but rather loads of "ghost images", that are mostly on top of each other, even though when i look at certain type lights, like the emergency flasher -button on a car dashboard (happened to be a lit one), yeasterday i noticed that i could distinguish at least eight different images! And there seemed to be even more of them on top of each other.
However, this is where it gets weird, i mean when i first looked at the flasher, i think i could see two images max. But when i started staring at it, they started multiplying. Not even in a split second, it took at least several seconds, maybe more, for it to multiply to eight or more images. Also, i was looking at it from an angle (from the side), so some of the copies were not completely in a straight line, but when looking straight at it and not from an angle, they always are either above or below the object, which i think is different from the images i have seen that are at least supposed to show what bright likes could look like in KC.
.
Also, i normally see max two images initially and the ghost image is so vague that it took me at least a year (or maybe my whole life) before i realized something was wrong. But again, depending on the object im looking at and the lighting, background etc, the ghost images may start multiplying, or it is also possible that there seems to be only one ghost image, but that it appears above the object instead of under the object, where it usually appears. Usually it looks like letters have extra shadows etc, but sometimes (rarely tough) the double image can become completely detached from the original image, at least when looking at text on a screen. There is absolutely no way to determine when this will happen.
Also, if i see the text on my phone double or multiple, this doenst always or even usually mean that i would see the phone double. Or that i would see everything double either. I have also noticed that same objects or letters do not always multiply in the same way, and may not multiply even at all, and that for example when i now look at my computer screen the text seems mildly double, but when try to read text from my phone, then it is not doubled.
I have no clue as to what this is. I have noticed that i have mild illusionary palinopsia and the ghost images are pretty much exactly as transparent as my visual trails. Also, certain lighting conditions that make the ghost images stand out also make the trails stand out. I have heard from cerebral polyopia, but i read somewhere that in that case the images shouldnt overlap? Theres so little information on cerebral polyopia that its probably impossible to tell, but i hope that the doctor i see tomorrow can tell something about this and refers me to an eye doctor. I just dont know how fast i will get the appointment with they eye doctor through the public health services...
So any idea on whether this could be KC? I also have loads of other symptoms like halos and starbursts around lights, but then again i know for a fact that i have always had them. My vision is also generally OK, my ability to recognize letters at a distance might have been slightly reduced from what it was, but it seems to be the visual snow that prevents me from seeing, not the blurriness. Also strangely, the polyopia doesnt seem to have any effect in my ability to see at all, and as i kind of described, at least most of the time the images seem to be multiplying only when i stare at something.
I have never needed glasses and have no problems functioning when it comes to my vision. I have never had an injury to my eye. i do have neurological symptoms like illusory palinopsia, visual snow and severe migraines, and a history of at least five concussions. My MRI was normal though when we took it three years a go, but from what i hear only severe injuries show up on regular MRI.