New member with a question

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MFKOTHDIWALA
Newbie
Newbie
Posts: 7
Joined: Tue 26 Jul 2016 3:36 am
Keratoconus: Yes, I have KC
Vision: Other

Re: New member with a question

Postby MFKOTHDIWALA » Tue 26 Jul 2016 5:01 pm

Hi, I got I got advance KC in my right eye I am wearing hard lenses from 14 years but now the lens is not fit well I can't wear lens more then two hours a day my eye hospitals consults told me they can't do anything for me because I got one artificial eye plus my KC the lens I wear now it's falling down anytime from my eye even I put lens now sometime in after 10 min 15 min it's come off from eye I can't find it because I have no vision in other eye even I can't find job I am on esa I call for medical from esa I went with my wife I got my eye specialist letter I am partly sight register with local authorities and I got letter after medical from esa I am fit I have to go to find job they stop my benefit I can't believe it I can't go to job centre can you advice what I will do I am very sad from hear this even I can't sleep do you have any ideas tks take care

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Anne Klepacz
Committee
Committee
Posts: 1943
Joined: Sat 20 Mar 2004 5:46 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses

Re: New member with a question

Postby Anne Klepacz » Tue 26 Jul 2016 8:12 pm

You really need to appeal this decision - a lot of decisions like this are reversed on appeal. But you should get expert help with your appeal. I don't know whereabouts in the country you are, but Action for Blind People have welfare advisers and you can find the nearest office to you at www.actionforblindpeople.org.uk Alternatively your local RNIB office or your local society for the blind. Did your eye specialist's letter say that you could only wear your lens for two hours a day? If it didn't, then do go back to the hospital and ask them for a letter that explains that as well.
Though on the subject of lenses, it sounds as though the lens you've got is a small rgp one. Has the hospital you go to ever tried a scleral lens for you? That's a big lens which covers the whole eye so you wouldn't have the problem of the lens falling off.
There's quite a few different types of lens for KC these days. If you e-mail me at anne@keratoconus-group.org.uk I can send you more information.

MFKOTHDIWALA
Newbie
Newbie
Posts: 7
Joined: Tue 26 Jul 2016 3:36 am
Keratoconus: Yes, I have KC
Vision: Other

Re: New member with a question

Postby MFKOTHDIWALA » Thu 28 Jul 2016 11:08 pm

Tks the Manchester Royal eye spacialist Mrs F. Carly is one of eye hospital my Dr. She wrote that I can't wear lences in one more than 2 hours a day without lences his vision very limited his got one artificial eye and without lens he is getting full help from his family at home anyway tks for your reply God bless you take care n have a good time I will tommorrow to act on for blind people.

MFKOTHDIWALA
Newbie
Newbie
Posts: 7
Joined: Tue 26 Jul 2016 3:36 am
Keratoconus: Yes, I have KC
Vision: Other

Re: New member with a question

Postby MFKOTHDIWALA » Thu 28 Jul 2016 11:31 pm

Hi, the contact lens clinic hospital specialist in KC hard lence staff try big n many different types of lens but but no vision power only they said the lens I wear is last for me you can wear as long as you fill comfort if I wear my lens more hours like 2 hours in row the the eye get red n painfull and next day I can't wear I need to give rest for few days then I will again start to wear it I can wear lens 30 min or 40 min then 2-3 hours rest then I put it bk for 30min this how I can wear lens 2 hours a day in winter time even I am scared go to local shop with lens in dark bcoz Len's falls I can cross the road I don't know why they don't understand people problems I feel the decision maker have a same problem then they realize what are other people suffer from

MFKOTHDIWALA
Newbie
Newbie
Posts: 7
Joined: Tue 26 Jul 2016 3:36 am
Keratoconus: Yes, I have KC
Vision: Other

Re: New member with a question

Postby MFKOTHDIWALA » Thu 28 Jul 2016 11:41 pm

Tks Anns I register with actionforblindpeople plus I phone yesterday to local mp Kate green office and explain to her sectary my problem they going to pass this message to kate green and she will contact to dwa for my esa decision

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Anne Klepacz
Committee
Committee
Posts: 1943
Joined: Sat 20 Mar 2004 5:46 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses

Re: New member with a question

Postby Anne Klepacz » Fri 29 Jul 2016 9:14 am

From all you say it sounds crazy that your benefit was stopped. I do hope Action will be able to help you. Let us know how you get on.

MFKOTHDIWALA
Newbie
Newbie
Posts: 7
Joined: Tue 26 Jul 2016 3:36 am
Keratoconus: Yes, I have KC
Vision: Other

Re: New member with a question

Postby MFKOTHDIWALA » Sat 30 Jul 2016 11:52 pm

Hi, tks for reply I phone 3 days before to my local mp office kate green and I told his staff for my I was on esa from last 12 years they, call me for medical an I got eye problem they stop my esa & I got letter I have go to job centre jsa I will not get esa I can't go to jsa because I can't fulfill there request for job search can not work of my poor one eye with KC & limited 2 hour's of wearing time a day I phone esa too I want Mandatory Reconsideration I need full copy of report of medical mp wrote letter to DWA that Mr kothdiwala got eye problems he was on esa in medical he was sent jsa he can't go to jsa he request for Mandatory Reconsideration please look once again and let me know what do you think is mp letter will help ?

User avatar
Anne Klepacz
Committee
Committee
Posts: 1943
Joined: Sat 20 Mar 2004 5:46 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses

Re: New member with a question

Postby Anne Klepacz » Mon 01 Aug 2016 9:38 am

A letter from your MP should certainly help.
All the best with this.
Anne

MFKOTHDIWALA
Newbie
Newbie
Posts: 7
Joined: Tue 26 Jul 2016 3:36 am
Keratoconus: Yes, I have KC
Vision: Other

Re: New member with a question

Postby MFKOTHDIWALA » Mon 01 Aug 2016 4:53 pm

Tks Anne have a good time & take care

mikkey01
Newbie
Newbie
Posts: 1
Joined: Wed 02 Aug 2017 10:20 pm
Keratoconus: Yes, I have KC
Vision: Contact lenses

Re: New member with a question

Postby mikkey01 » Wed 02 Aug 2017 10:28 pm

Hello all ? Just read this , absolutely disgusting this is , im in the same situation and the same happened to me by Maximus , the so called Assessor lied on his report , things i said he never used he said the opposite . I am appealling as i am so angry !!


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