Eyelid drooping

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Laura Hook
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Eyelid drooping

Postby Laura Hook » Tue 28 Jan 2014 9:42 pm

Hi everyone!
Been quite a while since I posted and since then I have had a cornea graft which is almost 6 months old now :) Everything's going well with the graft but since the operation I've been left with a droopy eyelid which is leaving me looking quite uneven and sleepy-looking! Initially I thought it was swelling from the operation but it has persisted and leaving me quite self-conscious. Every time I've mentioned it to my surgeon since he has sort of shrugged the questions off and not even explained what happened. I've done some research and i'm presuming that the muscle in my eyelid has been stretched during the operation but i'm obviously concerned that my consultant doesn't seem to want to talk about it. It's worse when my eyes are tired at the end of the day and I've been suffering from some headaches because I've been compensating by lifting my brow (leaving me with a sort of quizzical expression!). Anyone else suffered from this post-surgery?
Thanks
Laura

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Anne Klepacz
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Re: Eyelid drooping

Postby Anne Klepacz » Wed 29 Jan 2014 11:55 am

Hi Laura,
I'm glad to hear your graft is doing well. I don't know if anyone has experienced this post surgery, but a friend of mine (who doesn't have KC) had a droopy eyelid which was getting droopier as time went on and she had a successful procedure to have it 'lifted' which seemed quite straightforward. So I guess that's probably something that could be done for you once the graft has settled down.
All the best
Anne

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Steven Williams
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Re: Eyelid drooping

Postby Steven Williams » Wed 29 Jan 2014 10:27 pm

Could it be due to the medication prescribed- steroid drops? as informed on this thread by the inspirational Lea:-

viewtopic.php?f=1&t=13770&p=69189#p69189

the reason being that all the steriods for the past nearly 4 years have resulted in weakening muscles of my eye lid causing distruption to it and
droopyness


My eyelid also droops since my graft. Before I had my graft I specifically asked if there were any negative side effects with the OP. The response was negative.

I suspect Lea is correct but I will ask the question at my next consultation.
"The mind is like a parachute it only operates when open"

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Laura Hook
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Re: Eyelid drooping

Postby Laura Hook » Sat 01 Feb 2014 10:08 pm

Although steroids can cause some muscle weakening I highly doubt this is what happened to me as my eyelid has been like this since I woke up from the operation- from internet research I think the condition is called ptosis? Apparently people who wear contacts for a number of years can develop it from the repeated stretching of their eyelid getting contacts in and out e.c.t but it's most common in older people as your muscles weaken as you get older. I found this- http://www.eyeworld.org/article-post-surgical it's mainly about cataracts but it does mention cornea grafts. I think I'm just going to have to make my surgeon talk next time I see him instead of the usual shrug of the shoulders! haha

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Steven Williams
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Re: Eyelid drooping

Postby Steven Williams » Sun 02 Feb 2014 1:18 am

Good luck Laura with your surgeon and let us know the feedback.

I asked my GP about the steroids and he confirmed that the negative effect is to weaken muscles when taken internally but was not sure of effect if applied by drops in the eye.
"The mind is like a parachute it only operates when open"

snorkelboy
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Re: Eyelid drooping

Postby snorkelboy » Wed 05 Feb 2014 2:45 pm

Hi,

My graft is about 3 years old now and I too have a bit of a droopy eyelid since the surgery.
I thought unit all that this was due to post op swelling but after all this time I guess probably
not. I have noticed that some says the drooping appears worse than others. I am currently only
on steroid drops every 3-4 days so again I feel that this is probably not the main cause.
I thought that it was just something that I would have to live with but now that I realise that this
appears a fairly common problem, I shall ask my consultant at my next appointment latter this
month.

I shall let you all know how I get on.

Regards.

Paul

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Laura Hook
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Re: Eyelid drooping

Postby Laura Hook » Mon 24 Feb 2014 9:27 pm

Hi,
Just an update- went to see my consultant today and he said that he'd refer me to oculoplastics after all my stitches have been removed at about 18 months post graft, very glad to hear that he has a plan!
Laura
Laura :D

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Andrew MacLean
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Re: Eyelid drooping

Postby Andrew MacLean » Tue 25 Feb 2014 11:20 am

Thanks for letting us know. All the best.
Andrew MacLean

snorkelboy
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Re: Eyelid drooping

Postby snorkelboy » Thu 27 Feb 2014 5:23 am

Hi folks,

I attended my routine follow up appointment on Tuesday. I spoke to my consultant about my ptosis. As a result of our conversation I have been referred to the oculoplastics team to get my eyelid fixed.
I shall let you know how I get on as and when.

Warmest regards.

Paul

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Andrew MacLean
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Re: Eyelid drooping

Postby Andrew MacLean » Thu 27 Feb 2014 7:22 am

All the best, Paul.
Andrew MacLean


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