UK Keratoconus Self-Help and Support Association

Good to hear, Carmel, that all sounds very encouraging. Keep in touch and let us know how things go.

Just to add that our West Mids organiser, John Thatcher, is hosting a Zoom meeting for members on Weds 6th September in the early evening. If you'd like to join that, do e-mail me anne@keratoconus-group.org.uk and I'll pass your e-mail address on to him so he can send you an invite.

I think what does work twice as hard in these situations is the brain, which is having to interpret two very different images from each eye. That's why we end up feeling so tired all the time, especially as the day goes on and the brain gets worse at 'blanking out' the bad eye. Do let us know what h...

Hi Carmel and welcome, I had my grafts in 86 (left) and 88 (right). At the time I was told they would last a lifetime, but medics now know that the full penetrating grafts (PK) that were available then have an average lifespan of 20 years. (The partial thickness grafts that are more often done these...

It sounds as if you've tried most things! There was an article about KC and dry eyes in the Autumn 2020 newsletter https://www.keratoconus-group.org.uk/index.php/newsletters/ You might find something there. And have you tried the ointments you can put it at night to see if they make any difference i...

We are hugely grateful to Mario Saldanha, corneal consultant at Singleton Hospital in Swansea. With his medical student daughter Dea, he will be doing the Cardiff 10K Run on Saturday 3rd September in aid of the Keratoconus Group and to raise awareness of keratoconus and its treatment in Wales. Reade...

Hello Asadali and welcome. Most of us get our lenses through a hospital eye clinic (which also means we get them at the subsidised NHS rate, whatever the type of lens) though not all hospitals provide scleral lenses. You would need to ask your GP to refer you. Southampton sees a lot of people with K...

Hi Andy,
Have you looked at our list of KC friendly optometrists to see if there's anyone near you there?
https://www.keratoconus-group.org.uk/in ... ometrists/

Hi Cripps, The KC Group will keep in touch with Dr Abass and post any further updates on the website. This was the first stage of the research, involving just a few cases to see if the idea was feasible. Projects like this tend to take some years and, of course, require further funding to take them ...

Hello Philippe,
I'm not a scleral lens user, but we have quite a few members who are. They're often recommended when a standard corneal rgp lens would be difficult to fit, as they don't touch the cornea (or the transplant). And a lot of people find them very comfortable. So definitely worth a try.