UK Keratoconus Self-Help and Support Association

Has anybody successfully applied for DLA? One of our members has recently had her application turned down and is intending to appeal this decision. She would welcome any advice from people who have succeeded. The main grounds for rejection seem to have been an unhelpful hospital letter. If you can h...

To the anonymous group member who organised a fund raiser at work and raised almost £200 for the Keratonus Group, many thanks. Your efforts are much appreciated.
Anne

Hello Ann Good to hear that your appointment has come through quickly after all. Just wanted to add that the Keratoconus Group has some literature on the condition including the report of our 2001 conference with an article about scleral lenses (they're the ones which cover the whole eye so they can...

Carena I hope you haven't totally given up on us after all this time without a reply. I don't know if you spotted the 'Supporting Students with KC' leaflet which you can print off the website, and which your son may want to give to his tutors. We also had a conference in 2003 which included several ...

Hi Karen
If you e-mail me direct anneklepacz@aol.com I can send you a helpful leaflet produced by Gill Levy of the Multiple Disabilities Unit at the RNIB on 'Keratoconus in people with learning disabilities'. Look forward to hearing from you.
Anne

A group member who doesn't have internet access rang me the other day to ask for tips on coping with hay fever - he's finding it difficult to wear his lenses at the moment. As I'm lucky enough not to have that problem, I'm posting this in the hope that someone can offer me some tips to pass on. Some...

Dear Susan The Group's 2nd conference last year included various talks on coping at work (a booklet of the full proceedings will be available in a few months time). If your employer continues to be difficult, you could contact the Disability Employment Advisor - there should be at least one at each ...

The Multiple Disabilities Unit of the RNIB have produced a useful booklet 'Keratoconus in people with learning difficulties'. You can contact them on 020 7388 1266 and ask for the Unit. They also produce a number of other factsheets on various aspects of eye care in people with learning difficulties...