UK Keratoconus Self-Help and Support Association

Hi Sutts, According to Google, both King's Lynn and Norwich eye clinics have optometrists though that doesn't tell me whether they actually provide lenses with their own contact lens department. East Anglia doesn't have a lot of eye clinics, but the nearest alternative would be Addenbrookes in Cambr...

Welcome back, Sutts. I've looked back on this forum and you were asking a similar question back in 2012! So it's great that you've had good vision with spectacles all this time. Grafts can sometimes change shape over time so that probably explains why you now can't get the same good vision. And yes,...

The KC Group will have a stand at the Birmingham Sight Village event on 17th and 18th of July. Sight Village is a great opportunity to see the latest technology for people with sight difficulties and to see what other eye charities have to offer. All the details are here https://www.keratoconus-grou...

We have produced a new information sheet which can be downloaded from our homepage. This is addressed to parents of newly diagnosed children/young people and is a guide to the basic things you need to know at that stage, including links to more detailed information. See Information Sheet 5 here http...

Many thanks for spotting this, Lia. It seems the change of heart has followed from an intervention by the Association of Optometrists https://www.aop.org.uk/our-voice/media-centre/press-releases/2023/06/16/dvla-publishes-revised-list-of-notifiable-conditions-list-for-drivers-following-aop-advice and...

For contact lens checks, once a year is normal. For grafts, if all has gone well, there may not be any need for even annual checks. At Moorfields, the contact lens dept would refer back to the medics if they wanted a 'veteran' graft looked at.

This research was delayed because of Covid, but these early results are encouraging.
https://www.keratoconus-group.org.uk/in ... ch-update/

If you're not on our distribution list for KC Group newsletters, you'll find the latest one, with the articles Green refers to, here - https://www.keratoconus-group.org.uk/index.php/newsletters/ And don't forget our meetings in March (details on the home page events ticker) on 18th in London and on ...

At our Zoom 'coffee morning' last Saturday, we were joined by one of the principal optometrists at Moorfields. He told us about a new coating for some contact lenses which could help people having tolerance issues, particularly with scleral lenses. You can read more on our home page https://www.kera...

Welcome to the forum, Cameron. We've e-mailed when you were having difficulty registering, so I've already told you my story. But I hope other forum users will reassure you that, now most people diagnosed with KC have the option of CXL, the prospects really are very much brighter for this condition ...