UK Keratoconus Self-Help and Support Association

Hi Rosemary My old corneas were so useless by the time they were replaced that I can't say I was sorry to see them go. But I was very pleased to hear from a researcher at our very first conference back in 2001 that she was sent old KC corneas for her research into the condition. I don't know what pr...

Hi Cat There are some forum members who have had Intacs done on the NHS, so I hope you will get some replies from them. And just to add a couple of other options to the list that Grifteruk has given you. There are also scleral lenses (the ones that cover the whole eye). Because they don't touch the ...

Hi Rich and welcome! Hopefully you'll have read quite a few posts here from people who are now getting on fine with lenses, though obviously not everyone finds it easy at first. And quite often the first pair of lenses you're given aren't the ideal fit and they need 'tweaking'. 6 years on you should...

Hi Steve and welcome to the forum! Sorry about your disappointment about the laser surgery - not a good way to find out about KC! But that's the way quite a few people find out these days - in the past, they would probably gone happily through life without ever knowing they had it. The topograhies d...

Hi Paul
Good to see you again, though sorry about the problem that gave rise to your post! But having caught the rejection early, hopefully all will be well by the time you see your consultant again next week.
All the best
Anne

Hi Popeye and welcome! I don't know where our other Australian members have disappeared to recently - let's hope you make them reappear! Did you know that there is a Keratoconus Assocociation in Australia? You'll find it at http://www.keratoconus.asn.au You don't say how long it is since you gave up...

Lynn - thanks for putting me straight! I was obviously naively assuming that optometrist's skill and experience had been acknowledged at last!
Anne

Hi Sam Hospitals have targets these days which they are supposed to keep to, and one of them is giving an outpatient appt within 3 months of a referral. So if you've been waiting longer than that, it's definitely worth checking. When I was first diagnosed, many years ago, I waited several months to ...

Hi Patrick You'll find quite a few optometrists who see people privately on our home page at 'Optometrists accepting KC referrals'. But while you might get a pair of lenses within 3 weeks if you go privately, that doesn't guarantee that you'll be 'sorted' before you go off travelling. It usually tak...

Hi Eileen I don't know why the hospital should be taking so long to decide whether your son actually has KC - if there's so much doubt, it rather suggests he has it quite mildly. Perhaps one way to get an answer would be to write to the consultant, setting out your son's dilemma and asking whether h...