UK Keratoconus Self-Help and Support Association

Yes I read that two points 1) He was at the late end stage where a transplant was the only real option 2) He did not do the CXL (he did the unproved epi on as he wanted it against advice and with out the transporter also) There are external reasons for a Transplant also, not just due to KC it self, ...

Rosemary sorry things aren't going your way, I send all my good will to you, I think its always the fault of the teacher not the pupil, the pupil being us and the teacher being the specialist, to be perfectly honest with my view, I hope they will have an answer for you. On other points like, "n...

Just out of interest Rosemary, did you go in to your transplant surgery with the thought (from consultations/considerations from family and friends and your own etc) you will have more to gain than to lose ?

With friendly regards

Definitely there is no finish line in medicine, there is evolution with any method used today and newer treatments that will come to the fore in the years to come by the time treatments which are new treatments today become more older ones. Today nothing has been proven to treat progression like CXL...

Well on the Kerasoft site they should say what you just said and that they are at the trailing stage only.

Only god can cure, a transplant ain't a cure or anything else. Only CXL treats KC's progression - Every other "treatment" masks KC.

The remit is if there is progression, this is through evidence that this is happening by checking at intervals, are you saying ophthalmologists are not giving the right advice ? What you say is so easy to say, where is the evidence if this is so, it needs a medical professional to make that judgment...

Intacs took five yearsr to be freely available on the NHS, CXL is done by NHS consultants and privately now as it is unethical to allow KC to progress. And contact lenses are not a treatment, its just an optical aid. Again, as it was said, which treatment has there been where someone has to wait unt...

One point I did not write in my post was, say the figure was 20 years for results to be called long term, if there are for 1l years, wouldn't another 9 years make it in total 20 years ? and so a quote of another 9 years said ? with every year this figure coming down. And where does this figure of 20...

For someone stumbling on a new treatment, it can be "shock, horror" as its new to them, as they don't know certain details already worked out by those who know, the person may "think" they know but actually you need to get a medical consultation to get the right facts, that's wha...

Where do you get this figure of 20 to 30 years ? and alsi few posts back you was saying 30 to 40 years.