UK Keratoconus Self-Help and Support Association

One important thing I did not metion or anyone else- is insurance. I am British and my wife is French. We tried to get an intact and cxl paid for by our French medical insurance. We went to a clinic in Paris. We were told by our insurance that its not covered ( I mean the treatment is not paid for b...

No I dont know what was in the drops. A chemical that smelt of eggs. In Eastern europe the Dr's do not really offer the patient much explanation partly due to language and partly due to a differnt culture where during Socialism DR's where seen as gods not to be questioned. In a funny way its not un-...

My consultant told me that in the majority of cases vision improves after CXL, so KC is not only stopped but reversed, it has to be done early enough for this to happen and that the treatment is not as invasive as compared to even wearing RGPs and we are not even talking about other corneal surgery...

cclman, any word on the eye drops they sent you ? in what it was ? and did your Dr say anything about haze ? I am surprised you was prescribed glasses this early I hope you continued good progress Pepe I had glasses before so it was just a change of prescription. The eye drops were to strengthen th...

A point to remember about CXL, the cornea must be above a minimum thickness before it can be done. Plus it locks the cornea into shape, so if your son is having lens problems, CXL on its own may not fix them. Like most things these need to be discussed witha consultant on a case by case bases. For ...

No dissrespect to any eye doctor or optician/specialist- but they can't commit to ccl/cxl just yet and say it def does stop it progessing as they could shoot themselves in the foot or both feet. Its better for them to say that "it may stop it" but it "may not stop it"! that way a...

Sorry typo not Sept OCT 20th OCT - Have new glasses now.... very dissapointed vision seems worse than the old glasses before the ccl/cxl!!! doc says may need time to settle and I may need a ring in the bad right eye this was suspected and I was offered it before- but wanted to wait at least 4 or 5 ...

Here is my diary of experience of CCL aka CXL aka Crosslinking- treatment Czech Republic, Both eyes. Told I had Keratoconus in 2005, wear glasses, age 42, drive and watch TV, or did......till treatment Medication given by clinic: Clear-view drops, antibiotic drops, anti inflamatory drops, pain kille...

As you may have seen my diary on the forum, yours truly- had ccl/cxl done in Sept. I went back 2 weeks ago for an eye test for new glasses. I now have new glasses and they eyes seem worse than before the ccl/cxl. The doc said they will need time to settle, I go back in Feb 09. The right eye is worse...

Annie In all your replies to people on the forum re your sons KC you have not metioned ccl/cxl as treatment for your son!! do you not know that maybe this is the first step in dealing with his KC :?: :?: :!: :!: People have treatment all over the world and this board is visited by people from other ...