UK Keratoconus Self-Help and Support Association

Scleral lenses are very expensive and also fitting specialist lenses also takes a lot of time which adds to the cost. I would expect that other specialist contact lenses would be charging similar fees for scleral lenses, if not more. You could try contacting Patient Advice and Liaison Service (PALS)...

Any thoughts? Should I assume that we have just not found a perfect fit for my left eye? I think that is probably the case. Sometimes the fitting of a lens for keratoconus can be described as being as much as an art as a science. About ten years ago I was having a refit for my contact lenses and I ...

My vision is ok in them but they are extremely uncomfortable Contact lenses shouldn't be uncomfortable so it would be worth asking to try one of the many different types available. On the keratoconus group website there is a link to conference and speaker meeting videos where you can find out more ...

You will need to see a High Street optician for a full eye test. This is because hospital contact lens clinics typically only look at the front of the eye. The optician or your GP could refer you to a hospital eye clinic for specialist contact lenses. Alternatively there are High Street opticians wh...

In the last twenty years or so that have been many developments in contact lens design. So it would be worth to see if you can find a more suitable lens. There are now specialist soft lenses, mini sclerals and hybrid lenses for keratoconus. Even small rgps can be made comfortable by piggybacking wit...

I think the first place you should go is to an optician for an eye test. You could probably get an appointment in a day or so. They would test your eyesight and hopefully be able to prescribe you with a new pair of glasses. When you book the appointment it would be worth mentioning that you have KC ...

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Saw cornea specialist who recommended keep trying different contacts but in running out of time and money!! It does sound like you need to see someone who specialises in fitting keratoconus and has a range of specialist contact lenses to choose from. It is unusual for keratoconus to progress in one...

I think a high myopia prescription is defined as more than - 5 dioptres. With my prescription I am always recommended to get high index lenses and small frames. With your prescription I would expect that high index lenses, although perhaps not the highest would also be recommended. Many years ago, a...

I use the Boston solutions. There are two solutions, a cleaner and a separate conditioning and wetting solution. Plus saline to rinse the cleaner from the lenses. The separate cleaner is to help remove protein deposits. I also use protein remover tablets from time to time as I do get quite a build u...