UK Keratoconus Self-Help and Support Association

3 months sounds about right. I always kept a spare pair in reserve as it took a couple of weeks for replacements to arrive. The usual need for a change was noticing that a sliver or chunk of the lens edge was missing.

I find that piggybacking seems to create more mucus than when I wore just RGPs, maybe that causes the clouding? I don't take my lens out until I go to bed so don't really notice what my vision is like then.

http://visionsimulations.com/simulators/ghosting-vision-simulator I've found this link - which was posted by someone here - very useful in explaining to others the kind of vision that KC suffers have to deal with. Maybe arrange a meeting with your boss, take him through some examples and explain tha...

I'm finding eye drops during the day are helping with comfort and vision with my piggybacks - I sit in an air-conditioned office right underneath a vent.

http://www.justgiving.com/Amy-Musto looks to be the one.

The feedback from my consultation today was that they have applied to the trust for funding for CXL but it has not yet been approved. It is available privately from one of the local consultants.

I've had Kersofts from the team at Leicester, found them very comfortable after a poor first experience with RGPs. Had to push a little bit to get them to agree as they (in my case) rightly pointed out that the acuity achieved doesn't quite match up to RGPs - but if you can't stand them then that's ...

Likewise I find piggyback RGPs do a good job for me in reducing ghosting. It does vary through the day though - I've found taking both lenses out and rinsing them in the afternoon helps if I have a long day planned.

[quote="Anne Klepacz"
Crosslinking is available on the NHS at a few hospitals in the UK, though not yet at Leicester.[/quote]

That's interesting. I have an appointment with one of the consultant's at Leicester on Thursday, I'll ask why and whether he thinks it may change any time soon.

Hi,

Were all the pictures taken recently or are some from a year ago?

Thanks,