UK Keratoconus Self-Help and Support Association

Our regular members will share my sorrow at the passing of Mike Oliver, co-founder of the KC Group. Many of you will remember Mike from meetings and conferences and know what a crucial role he played in the charity. You'll find a tribute to Mike on our homepage https://www.keratoconus-group.org.uk/i...

Except the issue isn't losing a lens but, as the link from the Association of Optometrists Lia posted explains, the danger of eye infections if bacteria get trapped behind the lens. Those waterborne infections can be blinding, which is why we're also told never to use tap water to rinse a contact le...

Many thanks to all who have put me right. Please ignore my original response!

I suspect waiting times vary between hospitals, especially after Covid and the backlogs that built up then. In theory, it should be no more than 3 months for someone newly diagnosed. Gartnavel sees a lot of people with KC and has a good contact lens department so if you're managing OK with glasses f...

Hi Jigs I don't wear sclerals but I've certainly done short flights (up to 3 hours) in rgps. And I would have thought eyes in rgps would be more prone to drying out than in sclerals. Might be different for a long flight. And I never learned to swim, but if you put goggles and swimming into the searc...

Hello Janet and welcome! There are different types of medication to control blood pressure, and it seems not all of them contribute to dry eye syndrome. So hopefully your GP will be able to prescribe a suitable one. And I don't know when you last used eye drops, but the range of drops is constantly ...

Hi Carmel, When we had our original grafts, all those decades ago, surgeons didn't really go into the risks or side effects of any procedure. And although it's great that we're given more information these days, it can be a bit unnerving. My regraft surgeon told me just before I went down to theatre...

Hello Lisey, We've recently had contact with the ECLO at QVH (I don't know whether you've seen that there will be a support meeting for people with KC at QVH in November https://www.keratoconus-group.org.uk/index.php/2023/08/12/east-grinstead-meeting/ so do go along if you can). I contacted her toda...

Excellent news!
And, just to blow our own trumpet for once, shows the value of asking questions on this forum.
Wishing you great success with your new lenses.

That all sounds really good (apart from the pain of course!) Wishing you good healing. Keep us updated.