UK Keratoconus Self-Help and Support Association

Andrew/ Lynn,

Thanks for you help and advice.

So that means contact lenses, reading glasses to go with lenses,distance glasses and prescription reading glasses.

So much for traveling light.

Hey ho

Andrew,

The problem I have is that reading specs alone will not correct the KC enough to allow me to read, so two pairs of specs are needed, does that make sense?

At the moment I am getting by with specs as I have not yet been supplied lenses I can tolerate for long periods. When I have the lenses in I can wear a pair of reading glasses, but when I have my distance specs on I end up with two pairs perched on my nose to read, and get some strange glances as we...

Steven,

I have requested Kerasoft at my hospital in Cardiff, and it went in one ear and out of the other.

They are of the opinion that they are not often successfull, but I know that is not the case by reading posts on this forum.

Frustrating or what!

Cheers

Fordy

Lou,

I have had this on a couple of occasions, and yes it can panick you, and does scratch, bring on the Kerasoft ( if only )

Cheers

Fordy

I must agree with Steven on this one, there seems to be no coordination beetween departments or monitoring of the situation. It seems to me that all they want to do is to send you away with as good a vision as they can in as quick a time as they can. While this may help us in the short term, we are ...

Higgy,

The optician that John has recommended also does work at the university hospital of Wales opthomology dept.

They would be a good choice for you, but dont come cheap.

Go for the hospital referal as well.

Cheers

Fordy

Lynn,

If your eyes are still changing in your 40's, is CXL an option for us oldies?

Cheers

Fordy

Anne,

Is this forum not about sharing good and bad experiences?

While I agree that we should not name individuals surely there is no problem naming and shaming Hospitals offering poor treatment to KC'ers.

Editing posts should be for extreme cases only.

Fordy

Guys,

What is the difference beetween having KC and a severe astigmatism?

I wondered this because many of the symptoms appear the same.

Over to you wise people.

Fordy