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by Anne Klepacz
Thu 14 Sep 2017 3:24 pm
Forum: General Discussion Forum
Topic: Important chance to improve eye care for KC
Replies: 0
Views: 249

Important chance to improve eye care for KC

The All-Party Parliamentary Group (APPG) on Eye Health and Visual Impairment is running an Inquiry during 2017 into the issue of capacity in NHS eye care services in England. The APPG Inquiry survey for patients is for people who have received treatment within the last three years (not including the...
by Anne Klepacz
Wed 13 Sep 2017 10:45 am
Forum: General Discussion Forum
Topic: alcohol delamination of the cornea
Replies: 1
Views: 234

Re: alcohol delamination of the cornea

A bit of googling suggests that it takes several weeks and sometimes longer to get the benefits of this procedure, so it sounds like early days for you. Hopefully you've got a follow up appointment soon to check on how things are going and where you'll be able to ask more questions. All the best.
by Anne Klepacz
Wed 13 Sep 2017 10:38 am
Forum: General Discussion Forum
Topic: New member
Replies: 3
Views: 265

Re: New member

As I said to Thomas, if you e-mail your postal address to anne@keratoconus-group.org.uk I'll send you our information booklet.
by Anne Klepacz
Wed 13 Sep 2017 10:35 am
Forum: General Discussion Forum
Topic: To all who have joined this forum recently
Replies: 186
Views: 83163

Re: To all who have joined this forum recently

Hello Ky and welcome, Thanks for sharing your story. People do ask about Intacs on the forum from time to time, so it's good to hear about the pros and cons from someone who has had them fitted. I'm afraid I don't know of anything else that could improve your vision, though who knows what more resea...
by Anne Klepacz
Sun 10 Sep 2017 7:04 pm
Forum: General Discussion Forum
Topic: Scleral lens supply and fitting on the NHS
Replies: 2
Views: 269

Re: Scleral lens supply and fitting on the NHS

Hello Brian and welcome, The problem might be that not many hospital clinics fit scleral lenses. So it would be a question of ringing around to check. Nottingham, Sheffield and Hull would all be nearer to you and all see quite a few KC patients. Whether any of them do sclerals, I don't know. Good lu...
by Anne Klepacz
Fri 08 Sep 2017 7:17 pm
Forum: General Discussion Forum
Topic: To all who have joined this forum recently
Replies: 186
Views: 83163

Re: To all who have joined this forum recently

Thanks, Dave, and it's good to know you've found the forum helpful. And yes, please do tell us about your journey (on a new thread so that more people will notice it).
And all the best for your next CXL procedure.
by Anne Klepacz
Wed 06 Sep 2017 1:34 pm
Forum: General Discussion Forum
Topic: To all who have joined this forum recently
Replies: 186
Views: 83163

Re: To all who have joined this forum recently

Hello Nick and welcome, Quite a lot of our West Midlands members use BMEC - in fact, KC Group meetings for the West Mids used to be held there, but have now moved to a quieter and more central location in a meeting room in John Lewis, above New Street Station. You'll find a notice about the next mee...
by Anne Klepacz
Wed 06 Sep 2017 1:23 pm
Forum: General Discussion Forum
Topic: Next London meeting 14th October
Replies: 1
Views: 243

Next London meeting 14th October

The next London meeting will be on Saturday 14th October at 11am in the Clinical Tutorial Complex, 2nd Floor, Moorfields Eye Hospital, City Road, London. Our speaker will be Mr Damian Lake, Corneal Consultant at the Queen Victoria Hospital in East Grinstead and he has called his talk 'Lasers and Ker...
by Anne Klepacz
Wed 06 Sep 2017 1:15 pm
Forum: General Discussion Forum
Topic: Study looking at the effectiveness of collagen crosslinking (CXL) in children is now recruiting.
Replies: 3
Views: 1043

Re: Study looking at the effectiveness of collagen crosslinking (CXL) in children is now recruiting.

A further update - the study continues to recruit young people aged 10-17. Another hospital is joining the study, at Newport in South Wales.
by Anne Klepacz
Tue 29 Aug 2017 11:18 am
Forum: General Discussion Forum
Topic: Keratoconus eye-drops reshape cornea
Replies: 2
Views: 447

Re: Keratoconus eye-drops reshape cornea

Thank you for this fascinating link, Enigma. Sounds as if this is still some years off but it would be great if it worked. New Zealand is a 'hot spot' for KC, with higher than average people affected, so it's maybe not surprising that scientists are working on innovative treatments.

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