Search found 1810 matches

by Anne Klepacz
Wed 19 Jan 2005 8:49 pm
Forum: General Discussion Forum
Topic: DLA advice needed
Replies: 10
Views: 2066

DLA Advice needed

Many thanks for all the replies. The reason I posted the message is that Denise isn't on e-mail and doesn't have access to the internet. I'll pass on your suggestions to her, but I think she'd really like to talk to someone who has been through the process. So if any of you would be happy to chat to...
by Anne Klepacz
Tue 11 Jan 2005 8:32 pm
Forum: General Discussion Forum
Topic: Cost of glasses
Replies: 2
Views: 903

Cost of glasses

Post graft, the first option is often glasses as contact lenses aren't usually possible before the stitches come out. But this often involves a complex and so expensive prescription. I had thought that anyone on benefit would get specs free (as they do for contact lenses). But one of our members tel...
by Anne Klepacz
Tue 11 Jan 2005 8:24 pm
Forum: General Discussion Forum
Topic: DLA advice needed
Replies: 10
Views: 2066

DLA advice needed

Has anybody successfully applied for DLA? One of our members has recently had her application turned down and is intending to appeal this decision. She would welcome any advice from people who have succeeded. The main grounds for rejection seem to have been an unhelpful hospital letter. If you can h...
by Anne Klepacz
Mon 13 Dec 2004 9:36 pm
Forum: General Discussion Forum
Topic: Thanks for donation
Replies: 1
Views: 673

Thanks for donation

To the anonymous group member who organised a fund raiser at work and raised almost £200 for the Keratonus Group, many thanks. Your efforts are much appreciated.
Anne
by Anne Klepacz
Thu 09 Dec 2004 9:02 pm
Forum: General Discussion Forum
Topic: Advice needed please
Replies: 12
Views: 3436

Advice needed please

Hello Ann Good to hear that your appointment has come through quickly after all. Just wanted to add that the Keratoconus Group has some literature on the condition including the report of our 2001 conference with an article about scleral lenses (they're the ones which cover the whole eye so they can...
by Anne Klepacz
Thu 25 Nov 2004 9:18 pm
Forum: General Discussion Forum
Topic: Supporting my son
Replies: 2
Views: 2060

supporting son

Carena I hope you haven't totally given up on us after all this time without a reply. I don't know if you spotted the 'Supporting Students with KC' leaflet which you can print off the website, and which your son may want to give to his tutors. We also had a conference in 2003 which included several ...
by Anne Klepacz
Wed 15 Sep 2004 3:47 pm
Forum: General Discussion Forum
Topic: I have a Down syndrom son who has been diagnosed
Replies: 8
Views: 1886

Son with Downs

Hi Karen
If you e-mail me direct anneklepacz@aol.com I can send you a helpful leaflet produced by Gill Levy of the Multiple Disabilities Unit at the RNIB on 'Keratoconus in people with learning disabilities'. Look forward to hearing from you.
Anne
by Anne Klepacz
Mon 14 Jun 2004 8:47 pm
Forum: General Discussion Forum
Topic: KC and hay fever
Replies: 3
Views: 1512

KC and hay fever

A group member who doesn't have internet access rang me the other day to ask for tips on coping with hay fever - he's finding it difficult to wear his lenses at the moment. As I'm lucky enough not to have that problem, I'm posting this in the hope that someone can offer me some tips to pass on. Some...
by Anne Klepacz
Thu 27 May 2004 8:52 pm
Forum: General Discussion Forum
Topic: Good Days and Bad Days
Replies: 4
Views: 1490

Good days and bad days

Dear Susan The Group's 2nd conference last year included various talks on coping at work (a booklet of the full proceedings will be available in a few months time). If your employer continues to be difficult, you could contact the Disability Employment Advisor - there should be at least one at each ...
by Anne Klepacz
Sun 16 May 2004 4:46 pm
Forum: General Discussion Forum
Topic: pain
Replies: 9
Views: 2689

pain

The Multiple Disabilities Unit of the RNIB have produced a useful booklet 'Keratoconus in people with learning difficulties'. You can contact them on 020 7388 1266 and ask for the Unit. They also produce a number of other factsheets on various aspects of eye care in people with learning difficulties...

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