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by Anne Klepacz
Mon 12 Feb 2018 11:46 am
Forum: General Discussion Forum
Topic: Conjunctivitis and RGP
Replies: 1
Views: 123

Re: Conjunctivitis and RGP

I think this is one that you need your optometrist to answer. I don't know if the infection can have got on the lens, but if it has, it's no longer a 'perfectly decent lens'!
by Anne Klepacz
Mon 12 Feb 2018 11:40 am
Forum: General Discussion Forum
Topic: Cost of RGP Lenses on the NHS?
Replies: 6
Views: 390

Re: Cost of RGP Lenses on the NHS?

I get my lenses from my hospital contact lens department, but hospitals that don't have one should be able to give you a voucher called HESp (Hospital Eye Service prescription) that you can take to the optician who has the contract to supply lenses with the hospital. From what I've heard from others...
by Anne Klepacz
Mon 12 Feb 2018 11:34 am
Forum: General Discussion Forum
Topic: Is it this expensive for everyone?
Replies: 6
Views: 418

Re: Is it this expensive for everyone?

Hi Gary and welcome, Most of us have our KC monitored in an NHS hospital clinic, where check ups are free and we pay the NHS price for contact lenses which is currently £57 per lens. So to avoid the costs you're paying, you'd need to ask your GP to refer you to a hospital eye clinic (if possible, on...
by Anne Klepacz
Fri 09 Feb 2018 8:57 pm
Forum: General Discussion Forum
Topic: To all who have joined this forum recently
Replies: 189
Views: 89117

Re: To all who have joined this forum recently

Hi Mak1 and welcome, I'm not sure anyone here can tell you which is 'best' - our eyes are so individual that only a specialist examining your eyes can give you reliable advice. But a few things to bear in mind - Intacs don't work for everyone and about 10% are removed because they can give side effe...
by Anne Klepacz
Fri 09 Feb 2018 8:30 pm
Forum: General Discussion Forum
Topic: New diagnosis
Replies: 1
Views: 140

Re: New diagnosis

Hello Gillian and welcome, The Eye Pavilion in Edinburgh does offer crosslinking on the NHS so do ask your GP or your optician to refer you there. And when you do see a corneal specialist, you might ask whether the Lasik treatment could have contributed to your developing keratoconus or corneal ecta...
by Anne Klepacz
Tue 06 Feb 2018 11:00 am
Forum: General Discussion Forum
Topic: KC lens fitters in East Devon
Replies: 7
Views: 411

Re: KC lens fitters in East Devon

Hi John, Many high street opticians rarely see people with KC and don't have much experience of fitting KC lenses. Most of us get our lenses from the hospital eye service, either from the hospital's contact lens department, or if they don't have one, from the optician that the hospital has a contrac...
by Anne Klepacz
Thu 01 Feb 2018 10:43 am
Forum: General Discussion Forum
Topic: Fundraising for research into KC
Replies: 3
Views: 373

Re: Fundraising for research into KC

And here is a link to another walker's fundraising page https://www.justgiving.com/fundraising/amy-musto5
Amy has done so much to raise money for our charity - please support her on the Eye to Eye walk.
by Anne Klepacz
Fri 26 Jan 2018 3:15 pm
Forum: General Discussion Forum
Topic: Next London meeting on 17th March
Replies: 5
Views: 443

Re: Next London meeting on 17th March

AGMs have always been in London. But the one day conferences that we organise, usually every 2 years, have been in Birmingham, Glasgow and Manchester as well as in London. This year's conference will be in Birmingham in September - we'll announce more detail once we have it.
by Anne Klepacz
Fri 26 Jan 2018 3:08 pm
Forum: General Discussion Forum
Topic: Diagnosed with Advanced KC at 34 but I feel my vision is functional.
Replies: 5
Views: 358

Re: Diagnosed with Advanced KC at 34 but I feel my vision is functional.

Scleral lenses should be a good option, as they don't touch the cornea so there's no danger of them rubbing an already thin cornea - though not all hospital clinics provide them. I'm puzzled by what you've been told about CXL as the cut off thickness is 400 (and some clinics use drops to temporarily...
by Anne Klepacz
Thu 25 Jan 2018 8:34 pm
Forum: General Discussion Forum
Topic: Back from hospital appointment :(
Replies: 2
Views: 265

Re: Back from hospital appointment :(

When they said surgery, was that crosslinking or a transplant or Intacs? It's good that you've got an urgent referral - I think in earlier posts you were talking about all sorts of delays when you were first diagnosed. Let's hope it is quick this time and that you'll have the chance to ask lots of q...

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