Search found 713 matches

by space_cadet
Tue 17 Apr 2018 7:26 am
Forum: General Discussion Forum
Topic: New glasses
Replies: 1
Views: 54

Re: New glasses

a good friend uses the website glassesdirect as can imput whatever the rx is
he doesnt have KC tho
good luck x
by space_cadet
Thu 12 Apr 2018 1:05 pm
Forum: General Discussion Forum
Topic: RNIB FILM -"IT COULD Damage the cause of our group"
Replies: 4
Views: 85

Re: RNIB FILM -"IT COULD Damage the cause of our group"

but surely one a film is in the public domain the target audience is out the window n anyone an potentially have access to it?!
by space_cadet
Wed 11 Apr 2018 8:27 pm
Forum: General Discussion Forum
Topic: RNIB FILM -"IT COULD Damage the cause of our group"
Replies: 4
Views: 85

Re: RNIB FILM -"IT COULD Damage the cause of our group"

amen! I raised this with the person whose details were on the post as I am legally blind due to KC have been 8 years now (I am 35) n was yet again given the rhetoric of KC doesnt cause blindness" no it wont cause no light perception but then again only <7% of folk who are blind see nothing at a...
by space_cadet
Tue 10 Apr 2018 9:17 pm
Forum: General Discussion Forum
Topic: Newsletters on forum for 2017 & 2018?
Replies: 4
Views: 111

Re: Newsletters on forum for 2017 & 2018?

looking forward to he new site
by space_cadet
Thu 05 Apr 2018 4:58 pm
Forum: General Discussion Forum
Topic: Newsletters on forum for 2017 & 2018?
Replies: 4
Views: 111

Re: Newsletters on forum for 2017 & 2018?

surely it is about time that paper newsletters are a opt in rather than automatic for membership as will rapidly cut costs not to mention a lot of us cant read print in the format it is sent....
by space_cadet
Tue 03 Apr 2018 6:50 pm
Forum: General Discussion Forum
Topic: yowchity fragmented retinal nerve and corneal abrasions
Replies: 0
Views: 47

yowchity fragmented retinal nerve and corneal abrasions

so sunday was spent in a&e where after bleeping the duty optom it was concluded my left eye has corneal abrasions which were at risk of ulceration, scribed some anti biotic drops n sent home, Today went to eye casualty as told to on sunday in regular a&e to be told afer countless tests and p...
by space_cadet
Thu 08 Mar 2018 12:29 pm
Forum: General Discussion Forum
Topic: Advice Please - Commuting to/from work
Replies: 6
Views: 377

Re: Advice Please - Commuting to/from work

sorry to hear of your lack of confidence due to your KC, BUT please if your KC is at a stage where CXL is a option your vision and KC is not actually that bad, yes that may sound harsh, but some of us have been left legally blind due to KC, n have to use a long cane or guide dog to navigate the worl...
by space_cadet
Mon 12 Feb 2018 11:07 am
Forum: General Discussion Forum
Topic: Is it this expensive for everyone?
Replies: 6
Views: 417

Re: Is it this expensive for everyone?

When my eyes could tolerate lenses the most I paid was from memory around 50quid but solutions on top. That was a good few years ago now so am sure someone will be able to let you know more upto date costs.
by space_cadet
Tue 06 Feb 2018 7:11 pm
Forum: General Discussion Forum
Topic: Money no object consultant/treatment
Replies: 3
Views: 300

Re: Money no object consultant/treatment

personally I wouldn't as view things as I was fortunate to be born sighted, sadly life had a different path for me n that was to develop KC n it to leave me legally blind despite umpteen surgeries, I have adapted ot the sight loss and wont allow it to stop me in life.
by space_cadet
Sun 04 Feb 2018 7:26 pm
Forum: General Discussion Forum
Topic: 2018 AGM - 17 March - election of committee
Replies: 4
Views: 289

Re: 2018 AGM - 17 March - election of committee

surely this should be made very clear as teh group is a registered charity and bound by rules regarding elections which are ultimately governed by the charities commission?

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