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by Anne Klepacz
Tue 23 Jan 2018 2:04 pm
Forum: General Discussion Forum
Topic: Fundraising for research into KC
Replies: 1
Views: 10

Re: Fundraising for research into KC

And if you're unable to walk on the day, do please support our walkers to raise funds. Here is the link to one of our walker's Justgiving page.
http://www.justgiving.com/owner-email/p ... id-GableKC
Let's make sure that KC isn't forgotten.
by Anne Klepacz
Mon 22 Jan 2018 2:31 pm
Forum: General Discussion Forum
Topic: Next London meeting on 17th March
Replies: 0
Views: 10

Next London meeting on 17th March

Our next London meeting will be the AGM on Saturday March 17th at 10.30am in the lecture theatre of the Moorfields Clinical Tutorial Unit which is now located at 15 Ebenezer Street (go up Provost Street which is across the road from the main hospital and you'll find 15 Ebenezer Street on the next co...
by Anne Klepacz
Mon 22 Jan 2018 2:25 pm
Forum: General Discussion Forum
Topic: Fundraising for research into KC
Replies: 1
Views: 10

Fundraising for research into KC

At least two of our members have signed up for the Eye to Eye walk on Sunday 4th March organised by Moorfields Eye Charity to raise money for research. We would love as many as possible of our members who live in or near London to join a keratoconus team on the walk. There is a 4 mile or 14 mile opt...
by Anne Klepacz
Tue 16 Jan 2018 12:12 pm
Forum: General Discussion Forum
Topic: Corneal Haze from Cross-linking
Replies: 19
Views: 8671

Re: Corneal Haze from Cross-linking

Hi Barry and welcome, Have a look at this thread https://www.keratoconus-group.org.uk/forum/viewtopic.php?f=1&t=16404 and many others like it on this forum. People's experience post CXL seems to vary a lot (and on a forum like this, we're more likely to get posts about the negatives than the pos...
by Anne Klepacz
Sat 06 Jan 2018 4:22 pm
Forum: General Discussion Forum
Topic: Keratoconus
Replies: 5
Views: 124

Re: Keratoconus

The hospital website should include a contact number for the PALS team (Patient Advice and Liaison Service). Or ring the hospital and ask to be put through to PALS.
Good luck!
by Anne Klepacz
Fri 05 Jan 2018 8:08 pm
Forum: General Discussion Forum
Topic: Keratoconus
Replies: 5
Views: 124

Re: Keratoconus

How often KC is monitored in a hospital eye clinic varies according to how mild it is - for milder cases it can be once a year, for cases where it's progressing, then it tends to be 6 monthly intervals. I take it the hospital involved doesn't have its own contact lens department and so you've been r...
by Anne Klepacz
Fri 05 Jan 2018 8:01 pm
Forum: General Discussion Forum
Topic: KeraSoft vision
Replies: 3
Views: 78

Re: KeraSoft vision

Usually with KC, contact lenses give better vision than glasses, but contact lenses come in a variety of types. Corneal rgp lenses are generally thought to give the sharpest vision, though they probably won't be as comfortable as the Kerasoft, and may take longer to get used to. We've certainly got ...
by Anne Klepacz
Tue 02 Jan 2018 8:12 pm
Forum: General Discussion Forum
Topic: Trying to get referred to Moorfields
Replies: 6
Views: 145

Re: Trying to get referred to Moorfields

Hi Jay,
Is your KC currently being monitored at a hospital in Leeds? If so, then the hospital should be able to refer you. If not, then I'm not sure what to suggest and don't really understand why your GP won't refer you. It might mean waiting until you're registered with a GP in London.
by Anne Klepacz
Tue 19 Dec 2017 10:36 am
Forum: General Discussion Forum
Topic: To all who have joined this forum recently
Replies: 186
Views: 83434

Re: To all who have joined this forum recently

Hi Suleman and welcome, It's always stressful to be diagnosed with a condition that most people have never heard of. But it's disappointing to hear of your experience at the first hospital your wife went to. Most of us get our lenses through a hospital eye clinic. That automatically means we get the...
by Anne Klepacz
Tue 12 Dec 2017 10:24 am
Forum: General Discussion Forum
Topic: Intacs
Replies: 2
Views: 116

Re: Intacs

Hi Dougie and welcome to the forum. I was hoping that someone who has had Intacs would have replied to you by now, but as they haven't.... This is what Mr Lake, corneal consultant at Queen Victoria in East Grinstead said about corneal rings at our last members' meeting in London. "Intra corneal...

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