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by Anne Klepacz
Wed 28 Mar 2018 11:43 am
Forum: General Discussion Forum
Topic: Can you help RNIB make a film about keratoconus?
Replies: 7
Views: 362

Re: Can you help RNIB make a film about keratoconus?

Thanks, Cloud, and I hope your new semi sclerals that you write about on another thread will in time become more comfortable. Though I hope any video made will be realistic. While many people with KC manage very well with lenses for many years, there are inevitably bad lens days or vision not being ...
by Anne Klepacz
Tue 27 Mar 2018 10:48 am
Forum: General Discussion Forum
Topic: KC Group conference 2018
Replies: 0
Views: 88

KC Group conference 2018

Thank you to the forum user who pointed out that our events ticker on the home page has the correct date for our planned conference in Birmingham on 15th September, but then points to out of date information about a previous conference. We'll correct this as soon as we can, and will be providing mor...
by Anne Klepacz
Tue 27 Mar 2018 10:39 am
Forum: General Discussion Forum
Topic: Can you help RNIB make a film about keratoconus?
Replies: 7
Views: 362

Re: Can you help RNIB make a film about keratoconus?

Large charities have the staff and resources to do things that small, volunteer run charities can't do, so working together can give us more of a voice than working alone. RNIB suggested a younger person for the video as the target audience is those recently diagnosed with KC, who are overwhelmingly...
by Anne Klepacz
Mon 19 Mar 2018 3:53 pm
Forum: General Discussion Forum
Topic: Can you help RNIB make a film about keratoconus?
Replies: 7
Views: 362

Can you help RNIB make a film about keratoconus?

Do you successfully wear contact lenses for KC and could you reassure recently diagnosed people that the condition doesn't get in the way of most things in life? We've been approached by the Eye Health Information Service of RNIB for help with a video they're planning. They already produce some good...
by Anne Klepacz
Mon 19 Mar 2018 3:35 pm
Forum: General Discussion Forum
Topic: Persecon e keratoconus
Replies: 1
Views: 125

Re: Persecon e keratoconus

Hello Ahmed, Most of us get our lenses from one of the large city hospital eye departments, where the expert in contact lens fitting for KC are concentrated. That way you'd have access to a variety of lens types and hopefully find one that suited you. We also have a list of optometrists happy to see...
by Anne Klepacz
Fri 16 Mar 2018 2:07 pm
Forum: General Discussion Forum
Topic: Next London meeting on 17th March
Replies: 5
Views: 443

Re: Next London meeting on 17th March

Around 2pm, depending on how long people want to chat over the buffet lunch.
Do come along.
by Anne Klepacz
Thu 08 Mar 2018 11:07 am
Forum: General Discussion Forum
Topic: Advice Please - Commuting to/from work
Replies: 6
Views: 377

Re: Advice Please - Commuting to/from work

Hi Heather and welcome, I think loss of confidence when our vision deteriorates is something a lot of us can relate to. It would certainly be worth talking to Occupational Health about this. And hopefully as the days get longer in the next few weeks, life will get a lot easier. I, for one, hate bein...
by Anne Klepacz
Thu 08 Mar 2018 10:57 am
Forum: General Discussion Forum
Topic: Registering to post on this forum
Replies: 1
Views: 235

Re: Registering to post on this forum

Hi Farrah and welcome. I've moved your post to the general discussion forum, where it's more likely to be seen by more people. Most of us get our lenses through a hospital contact lens department, where the optometrists have the expertise to fit contact lenses for KC. The Birmingham and Midland Eye ...
by Anne Klepacz
Sat 03 Mar 2018 12:29 pm
Forum: General Discussion Forum
Topic: Fundraising for research into KC
Replies: 3
Views: 372

Re: Fundraising for research into KC

Wishing our intrepid walkers all the very best for tomorrow. And some better weather than we've been having recently!
by Anne Klepacz
Thu 01 Mar 2018 10:06 am
Forum: General Discussion Forum
Topic: Cross linking Day 18 - Red Eye
Replies: 2
Views: 172

Re: Cross linking Day 18 - Red Eye

It may be nothing to worry about, but better safe than sorry with any sudden changes. I'd be ringing the clinic where you had the CXL done and asking their advice. Good luck and let us know how you get on.

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