UK Keratoconus Self-Help and Support Association

Jenny It is good to know we are not alone. We got his first lens 8 weeks ago. He is coping ok, however he is finding it hard to remove the lens. His eyes are very sore and red for a long time after. The hospital have been fantastic, we have to go every 4 weeks, so he enjoys time off school. However ...

Anne Thank you for the advice. I do hope the lens gives him better vision. He is very young I feel for any kind of invasive procedures, it worries me at the moment more than it worries him. He is the average eleven year old into sport etc and I guess we will have fun with the lens. I can imagine lot...

My son was at the hospital a month ago and we were told he has 6/60 vision in his left eye. Next week he is having his first try at contact lens to correct his vision to 6/36. I do hope that at eleven years old he can tolerate them. His other eye at the moment is 6/5. After some research we have fou...

Just returned from a very tiring morning at the hospital with my son. We have just seen a specialist in KC. Six weeks ago we saw a childrens consultant who told us all the info on KC. In the childrens department they don 't see any children with KC. We were in an adult clinic and have returned with ...

Yes I agree what a very expensive hobby kids are, but worth it after all they do choose your old peoples home. We have been told that KC runs in families and there is a very strong chance that if my son has kids it will pass on to them. We don"t know where it has come from all we do know is tha...

Thank you for the info. The only other info it has on is [ 6.60 H 9.30 V and distorted } It is very good to know that at least at the moment his other eye is compensating. As a mother and I suppose anyone with KC I think we all like the reassurance of this forum to ask questions. I am sure in the fu...

I have just received a copy of my sons vision test at my local optician sent to his consultant. Can anyone explain what it means: left eye v = CF Sph = -100 Cyl = -4.50 Axis 80 VA 6/24 right eye v = 6/6 Sph = -050 VA 6/5 I am due at the hospital in two weeks to discuss INTACS Last time he had a topo...

My money making son was over the moon with the replies. On a serious note I am sure we have a long road ahead. We find out in four weeks if the KC is in his other eye {I am told this may happen] I dont believe in keeping any info from him about the future. His consultant doesnt see any children with...

Andrew The going rate is a pound per day but somehow he has managed to make seven pounds in the last three days ! Kids have an amazing way of pulling at the heart strings. I am now told the Intacs will cost me a nintendo wii and if a graft is on the cards a new saxophone would be cool ! He does' nt ...

Andrew
Will keep you posted. Have been given eye drops for his left eye but had to bribe him to put them in he is making a fortune. Thanks again Linda