UK Keratoconus Self-Help and Support Association

Hi All, On Thursday night I noticed a small white lump on the sclera of my right eye slightly larger than the nib of a ball point pen. I use a scleral lens in this eye and it could be about where the lens meets the sclera, a went in and briefly saw a local optician on Saturday who (didn’t look ...

Hi Sweet, I felt compelled to write after reading a couple of you’re posts. Sorry to hear of the hassles you are gong through. I think like most here from time to time it just can all get too much. Sometimes it seems that you get one problem after another and can just feel like things will neve...

Hi All, To compound the issues I have with KC IÂ’m allergic to almost everything, I comeback positive to like 30 of 40 tests to some extent or another. Luckily IÂ’m not allergic to grass pollen, but have a massive reaction to trees in general and birch specifically.. Now I use Opticom and take 1 a d...

Has anyone any experience with humidifies? We have just moved into a new building and my life is hell. The air is so dry, everyone is complaining of sore eyes and dry, cracked skin. Wearing my RPG is intolerable and I'm managing every 2nd day with the Scleral. The facilities department, who seem rat...

I know from personal experience the affect that Aspartame (and other artificial sweeteners) has on my eyes. I have had KC for nearly 20 years now and worn various contact lens for nearly 15. Like most people I suffer from a number of side effects most notably dry eyes and general corneal sensitivity...

Hi Jacqueline, Is your eye red at all, I once had what I could only describe as a numb, pain of varying intensity that felt like it was at the back of my eye (Inside my head) My eye wasn't really red not more than normal but it turned out to be Iritis (An inflamed iris), this wasn't spotted by my GP...

Well I managed to get my Scleral in again today.. Wore it for a whole 3 hours. :shock: I took four attempts though, each time I had air bubbles and even on my 4th attempt there were three little air bubbles (Not that I could notice) but my fiancee did. Is it bad if there are a couple of little air b...

Hi Andrew, It's not I can't use Ami-dose, I just feel it will get way too expensive with everything else. I already have to buy large amounts of solutions, Hypromellose, Anti-Allergy drops, Viscotears etc.. Often I find the price of these products tends to increase much faster than inflation.. I rem...

What saline are you using with them? I have been given a bunch of Ami-dose but can't believe I'm going to have to waste so much by using once and throwing the rest away.

I know Ami-dose doesn't contain preservative, but surely it will last a day or two?

Regards,

Philip.