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by John Smith
Fri 10 Nov 2017 12:33 pm
Forum: General Discussion Forum
Topic: New sight registration for KC?
Replies: 13
Views: 666

Re: New sight registration for KC?

Jolly Roger,

What makes you think that we haven't sent out a newsletter this year? Please PM me with your real name and address and I can look into why you've not received any.

Regards,

John
by John Smith
Mon 16 Oct 2017 11:12 pm
Forum: General Discussion Forum
Topic: Is there anyone with KC who childdren have not got it.
Replies: 11
Views: 546

Re: Is there anyone with KC who childdren have not got it.

Hi Lola,

From the talk that we had a couple of years ago by Mr. Tuft, the stats are something like:

If a parent has KC, then there is a 7% chance of a child developing KC.
If both parents have KC, then (depending on which genes each parent have) the odds are between 7-49%.
by John Smith
Tue 15 Aug 2017 9:46 am
Forum: General Discussion Forum
Topic: Newsletters
Replies: 3
Views: 329

Re: Newsletters

Indeed.
by John Smith
Fri 11 Aug 2017 11:31 am
Forum: General Discussion Forum
Topic: Bi annual KC Group conferences on the website
Replies: 3
Views: 297

Re: Bi annual KC Group conferences on the website

Oops - that's my fault - sorry. I've corrected that link now. We currently only have the 2016 conference online (plus one or two other videos), but as we re-process those old files, we plan to make more videos available; and certainly we will be continuing to promote the videos online rather than vi...
by John Smith
Fri 11 Aug 2017 11:22 am
Forum: General Discussion Forum
Topic: Newsletters
Replies: 3
Views: 329

Re: Newsletters

I think we've had one so far in 2017, with another soon to appear. I'll check why the latest one isn't online.
by John Smith
Fri 11 Aug 2017 11:21 am
Forum: General Discussion Forum
Topic: Any positive outcomes from this?
Replies: 3
Views: 416

Re: Any positive outcomes from this?

I wasn't involved with this at the time, but I don't see such a thing at Moorfields when I visit.
by John Smith
Fri 11 Aug 2017 11:19 am
Forum: General Discussion Forum
Topic: Member of the UK KC self help & support group
Replies: 2
Views: 270

Re: Member of the UK KC self help & support group

No, you're not automatically a member if you are posting on the forum.

Members receive our newsletters, and we need to have full postal addresses for that, so the charity membership registration is different to the forum one.
by John Smith
Mon 03 Jul 2017 11:11 pm
Forum: General Discussion Forum
Topic: Success rates of corneal transplants in the UK
Replies: 2
Views: 472

Re: Success rates of corneal transplants in the UK

I suspect that nobody knows the answers to all of your questions. That's why your consultant couldn't tell you. Plus it is really complicated as driving standard means using both eyes, and most KCs are not affected the same in each eye. Remember though that the point of a graft is to make the vision...
by John Smith
Mon 03 Jul 2017 11:02 pm
Forum: General Discussion Forum
Topic: Moderator in spirit?
Replies: 3
Views: 447

Re: Moderator in spirit?

Thanks for pointing this out. Andrew sadly passed away just a week after we lost our 5 year old daughter, and I had no interest in maintaining the forum at that point. I've now removed Andrew's name as moderator, but of course retained his 7000+ posts.
by John Smith
Sun 13 Nov 2016 2:52 pm
Forum: General Discussion Forum
Topic: Newsletter on line
Replies: 3
Views: 565

Re: Newsletter on line

I'd love to put the newsletters on line.

We do have plans to do this, and to revamp the website to allow more people to update it; but personal circumstances have got in the way recently. Hopefully in the new year.

In the mean time, I'll put some recent newsletters online now.

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